I posted on this forum about 3 weeks go about my recovery post lletz, turned out I had an infection. A week of antibiotics and off work I felt so much better and the discharge had virtually stopped and I finally felt more normal again. I got my results on monday and it showed CIN 2 with warty koilocytosis but removed with clear margins, hpv high risk strain still present. I was told to have a repeat smear in 6 months for proof of cure. Felt pleased the cin was gone but slightly worried about the hpv still being there.
That aside wed afternoon I came home from food shopping and took bags out the car and felt a gush - first thought was maybe I had wet myself (not that it is a normal occurrence either!) just the amount of fluid. Ran to bathroom and found I was bleeding heavily, soak pad, trousers etc. I carried on bleeding and passing clots, called an ambulance as the gp advised on the phone, lost at least 300mls before hospital, another 600 in a+e, they put in a vaginal pack and catheter to try and stop the bleed. Went to the ward and then about an hour later I had bled through the vaginal pack and over the bed so they wanted to cauterise the cervkx. Was in a lot of pain so after the doctor tried to do it on the ward and I screamed so much I probably woke all the other patients he gave up as he couldnt see due to the amount of blood. So I went to theatre and had a ga to be cauterised took about 40mins in theatre. Woke up and couldn't breathe, seemed to aggravate my asthma. Lost nearly 2 litres in total they suspect from my iron levels.
Now I am home and in shock. Terrified I might bleed again. Has anyone else experienced this?
Oh Becca, you're not having a good time with this.
i had the same thing, and it seems lots of other ladies have too. I still shudder in horror when I think back to my time in A and E.
i started to bleed on a Monday night; I had had my period over the weekend and felt really rough then the Monday I felt mush better and went for it with the food shopping and hoovering. I did have a sore back so took some asprin! Well, that was one bad decision after the other!
Since then, even though I've just had light discharge, I have been so careful. However, I really do think I'm ok now. The sealing up does seem to work! I've even had an internal exam as part of my treatment plan meeting (that was a pleasant surprise!!!) and nothing started again. I am bit nervous about my next period, but haven't heard of anyone saying that it's been a problem after that length of time, the three week bleed seems to be the common problem.
sorry, waffling. Just try not to worry and really take it easy for a bit. Tesco online and not hoovering!
Hey, yes I had exactly the same. Touch wood I've been ok for the last week. Had a bad bleed and two cauterisations. I'm due on this weekend and keeping my fingers crossed it doesn't happen again. Stay rested and fingers crossed you should be fine. Xx
No Molly its not been the best! Can only get better I guess!
I have been signed off work for two weeks and my partner has been amazing. He held my hand all the way through it. My family have also been popping in and helping me. So bed rest and box sets seems to be the plan for now. In quite a bit of pain so is making me behave too.
Just taking the antibiotics and praying that I dont start to bleed again. On iron tablets to boost my levels back to normal. Just nervous everytime I check my pad incase im bleeding again, bit paranoid!
This forum has been a god send, so good to be able to talk to people who understand and have been in the same position.
I went into hospital after calling myself an ambulance at 2.30am due to the constant shocking gush of blood and clots every time I moved -like wetting myself feeling! even on laying down (that suddenly become much much worse over 2 days).
I was 16 days post Lletz by GA and the hospital said it was an unusual complication.
My period was also happening and they couldn’t see if blood was from the Uterus or Cervix until later (was wound on cervix in the end)
Im also on Clopidogrel and aspirin blood thinners -they stopped in hospital over 2 days but then this put me at further risks …not a good combo.
They also found I had a raging UTI -didnt notice as too much else going on.
I was nearly in surgery 3 times , then packing was decided. BUT the alternative was surgery and I have significant heart failure so they wanted to avoid.
Up to a ward where I continued to bleed through the packing gauze inside me to put pressure on the cervix within 5 minutes of it being sited.
They had me on all sorts of IVs ,paracetomol,Fluids including the IV Transexamic acid to try to stop the bleeding.Finally at 9.30pm on the Saturday they used the Silver Nitrate on me and it worked. Yay!
Next day I was given 530ml blood transfusion in x2 bags and sent home with iron tablets twice daily ,antibiotics and painkillers .I stayed in until 6pm on the Sunday 09th April .
The blood test in hospital b4 transfusion showed my haemoglobin levels had dropped 127 to 87 at quite a speed the ward sister said.
The discharge notes states -Heavy PV bleeding after LLETZ and Anaemia.
The wording haemorrhage wasn’t written in my discharge notes ? but used throughout my visit .Don’t know why its not on my notes as this ? should it be? if it was Just Heavy bleeding (so was NOT )and I could have dealt with this at home surely!
I came out and here I sit -still pale, most dizzy, feeling sick on/off and upset stomach ,period type pain! though on Norethisterone daily to stop That bleeding with a weird damp cold feeling and soreness in the V area-keep thinking I need to change but no real need to as so slight. .Bleeding is more pink tinged fluid , sanitary pads are so sore for me to use -think I’m intolerant to chemicals in them but can’t yet go without… anyone have this with pads?
SHOCKED to the core this happened after the Lletz procedure.21 days on still no results …
I am SO Sorry for all those who have been unlucky like me to have had this complication They do say its NOT usual though.
I really hope my results are sent soon and those pesky abnormal cells were innocent after all.x
Paula - what a terrible time you’ve had! Not only an awful experience going through it but a trauma too. I too am surprised they only put ‘Heavy Bleeding’ on your discharge when it clearly was a haemorrhage, especially if you had a blood transfusion as a consequence! This is pretty rare, but not unique - as you’ve seen from this thread. Hopefully this will be the end of it, but your body has had a massive shock and it will take time to build your iron levels back up, so it’s not surprising that you are feeling weak and dizzy. I hope there is someone with you, and that you can make sure you’re not alone for the next 24 hours. Yes, I hope it’s all been ‘worth it’ and the abnormal cells are completely gone. Take care of yourself. X
I’m so glad i found this old thread as I feel a bit more normal now!
I was 9 days post LLETZ & had a bit of a heavy bleed which I expected and was like a heavy period for a day, no problem.
Was feeling more like my old self on day 12, then on day 13 i called 111 as the bleeding was suddenly very heavy & I was passing big clots. They called an ambulance and took me to hospital. I lost 2 1/2 litres of blood and my blood pressure dropped so low they had to give me chest compressions which was scary, i was honestly asking myself I was actually dead! I then passed out. They gave me 2 units of blood & a bag of plasma & took me down for surgery.
I had the catheter & packing removed the next morning and was discharged in the evening once my BP was over 100. It took me a full week to recover my strength at home.
I’m now 25 days post LLETZ and 12 days post surgery. Still getting a tiny bit of watery blood but only enough for a liner. The paranoia is very real though, its going to be a while before I trust that its not going to happen again.
Hopefully my biopsy results will be here soon and they’ll be good and I can put this nightmare behind me.
Thanks for listening!
Oh goodness, quite relieved to find this forum as others have said. Very similar story. 2 weeks post lletz, was at the end of my period then suddenly on Halloween night(!) I had a severe haemorrhage, their words. I received 4 packs of blood and two packs of platelets, and was resuscitated 3 times. (I feel great love and respect for all my doctors and nurses and donors, i owe them my life.)
I had cathetar also and two days later I was peeing blood (further infection? But no white blood cells in urine) They found no markers for infection from my lletz either, but said it still could have been the cause? One day left of two different antibiotics, and loads of iron pills still. My heart starts pumping hard even walking from one room to the next, and I’m a runner. Bright fresh blood still, now no blood in urine. I’m just scared a lot of the time.
Not only an awful experience going through it but a trauma too. I too am surprised they only put ‘Heavy Bleeding’ on your discharge when it clearly was a haemorrhage, especially if you had a blood transfusion as a consequence! This is pretty rare, but not unique - as you’ve seen from this thread. Hopefully this will be the end of it, but your body has had a massive shock and it will take time to build your iron levels back up, so it’s not surprising that you are feeling weak and dizzy. I hope there is someone with you, and that you can make sure you’re not alone for the next 24 hours. Yes, I hope it’s all been ‘worth it’ and the abnormal cells are completely gone. Take care of yourself. X
