I hope that someone might be able to help me with how nervous and frustrated I'm feeling ahead of surgery next week.
I had a smear test a month ago and a colposcopy two weeks ago. I was sent the letter for colposcopy without any information about why I was being asked to go for one beyond "abnormal smear" - I really just thought that it meant the test had been corrputed in some way.
At the colposcopy appointment - before the exam started - the doctor told me that I had been asked to attend as my smear test had shown glandular abnormalities, which she explained were changes in the cells in the canal behind the cervix. During the colposcopy she said that there were also "severe" changes in the cells of the cervix and that she wasn't going to bother taking a biopsy as they needed to get me booked straight in for surgery.
I was really upset during and after the test, I was given a printed factsheet about LLETZ and told to wait for a call from the hospital with my surgery dates.
The hospital called me later that day to book me in for a pre-op appointment, which was the first time I realised that I'd be having a general anaesthetic. Obviously I was confused as the LLETZ factsheet I'd been given said it was a procedure under local anaesthetic. The lady booking me in for my appointment didn't have any more information and said that I could ask questions at the pre-op.
The day before pre-op appointment I called my GP to ask if they knew what I was actually having done. They said that they had received a letter from the hospital saying that I would be having a cone biopsy (not LLETZ) and explained a bit more about that procedure, and again, said that the nurse at my pre-op would be able to answer all my questions.
I turned up to the pre-op appointment with a notebook so I could write down the answers to all my questions (ranging from 'do I have cancer' to 'how long do I have to wait before I can go swimming') but the nurse that I saw wasn't able to answer any of these questions properly. She said that she was just going to check that I was fit for general anaesthetic and then handed me another pile of factsheets about everything from general anaesthetic to the painkillers I'd be given afterwards. Buried among this pile of information was a factsheet about hysterscopy. Nothing about cone bioposy. I asked if she had any information about the bioposy and she didn't - but said I could ask the consultant before the surgery (which is in two weeks time).
I have been able to find some information on these procedures (hysteroscopy and cone bioposy) from this brilliant website, but I'm still feeling really nervous and quite frustrated that no-one at the hospital or my GP have properly told me what the results of the tests are and what I'm actually having done in surgery. I have nightmares about waking up after the operation and finding out they've done a hysterectomy (obviously, I know they won't do this but I feel like I'm so much in the dark that anything is possible). Has anyone else experienced this kind of frustrating lack of communication? It's all very well for people to tell me not to worry, but when they send me off with no proper information about what is happening I do nothing BUT worry!
I'm especially concerned because I don't want to turn up to hospital with no confirmation of what I'm having done. I received the confirmation of my operation date in the post but that just says "your procedure is confirmed for 24 July" - WHAT PROCEDURE?!?
Sorry for the hugely long post, I'm just feeling so overwhelmed at the moment and hope that someone can help.