I just wanted a bit of feedback and advice on your own experiences about diagnosis, waiting times and general information.
I'm feeling really frustated about the situation, and almost as if I have been given this diagnosis then left to figure it all out myself. I have found all my info out from websites like this one, as no one i.e. a medical professional has really told me anything.
When I went for my LLETZ biopsy results I was seen by the doctor who carried out my LLETZ and he told me I had cancer, and that it was stage 1 (although everyone else says theirs wasn't graded until after their MRI). He told me that my next appointment would be an MRI within the next week and then I'd have an appointment with a consultant a few days after that to discuss treatment. This is not a summary of what I was told, this is ALL I was told, then given a macmillan booklet then left the hospital. I felt so confused and scared as I had no idea what to feel and I had been given the bare minimun info.
In my macmillan pack there was a card for the clinical nurse specialist, so I emailed her to ask for some more information. She was great and told me that my MRI would be within 3 weeks, not 1 (in fact ended up being 2 weeks after diagnosis) and that I wasn't going to meet the consultant the next week, that the doctor must have meant that this was the MDT meeting about me that I wouldn't attend.
After my MRI the person who carried it out told me my results would be available that same day to be reviewed, but then I had to wait almost a week after that for the next MDT meeting, and then my nurse rang me and told me that (thankfully!) it was very early stages, and that I'd have a meeting with a surgeon the following week. When I received my letter it was in fact 3 weeks until my surgeon appointment, which will be 6 weeks after diagnosis, and then I'll have a further wait before any treatment takes place.
What I want to know is, is it normal to have such long waits in between appointments, and is it normal that I was diagnosed 4 weeks ago but haven't even seen a doctor, a nurse, a consultant or a surgeon yet?
So sorry for the lenghty post, quite aware that I'm moaning a lot but I'm just very confused and annoyed.
Thank you :)