Hope you are keeping well. So I had my 1st chemo round today and just thought I would share my experience with all you ladies who may have upcoming chemo.
I’m on cisplatin and 5fu for 2 rounds to start off with before I start my chemo/rads. So I was in today for my cisplatin it was a very long day. I got a picc line yesterday so at least there is no more needles for this stage of the treatment. Bring loads to entertain you as it can get boring. I did get up and walk about when I could to try and kill some time and my sister and I played cards and had a few giggles so it really wasn’t as bad as I thought it would be. I did have a little cry when they put the chemo on it just came on all of a sudden and I didn’t actually know why I think I was just overwhelmed and had tried to stay so strong at home with my daughter that it just all came out in that room. All the nurses were lovely and offered me a private room but I decided against it and stayed with my group. I didn’t feel the chemo whilst the line was in other than it was cold cause it was kept in a fridge before hand. Was given anti sickness tablets and so far so good.
I have the 5fu home with me to be given through a period of 4 days it looks like a small baby bottle and I have like a bumbag round my waste to carry it. It is easy to cover so can still get on with my normal life without being looked at weird. Lol I will have the next cisplatin and 5fu again after a 3 week break.
I will kept you’s all updated with my progress and hopefully this month or two goes quite quickly and I can get back to my boring life (I miss it so much) lol
I was expecting to be feeling sick as soon as it started and tired but apart from my wee cry it was extremely doable and was up and about and outside in the garden. Whether I'll be able to do a lot in the weeks to come I don't know but trying my best to remain positive.
5fu is a new chemo drug that they are introducing to be used for cervical cancer. It is usually used for anal cancer but from trails that they have run they seem to think it will increase the changes that I will be cured with no reoccurrence so thought I would give it a go. It is a pain I have to have it attached for 4 days not really looking forward to sleeping with it attached as I tend to roll about and afraid I might just rip it out of my arm lol will have to put pillows on either side of me to try and avoid that lol
im so happy to hear that it wasn't as. As as you thought it was going to be. I actually didn't mind my chemo days as it was a chance to put my feet up and talk to so many different lovely people. I always went alone so I didn't feel I had to entertain anyone as it is a long day. Snacks are a must! I did bring some movies and books but most of the time I chatted the day away. I learned so much on those days and I also grew as a person as the people I met were so inspirational. The nurses and volunteers were wonderful but the other patients were amazing. I never thought I would meet people so willing to share and give you support. Having a positive mind will definitely help you through this. I hope you will continue to be as positive. please keep posting as we are all here to cheer you on and help when we can!
Glad your trying something new and I hope it works for you and those who will follow. Also glad you dont fibd it too bad!
I am not a Laura but I started my chemoradiation yesterday and as you said not as bad as I imagined. Unfortunately I need a transfusion as hb low and as I am prone to nausea and sickness when in cars and during pregnancy it was no suprise when i woke with bloodhound sense of smell, indigestion and queasy tummy. Hopefully feel better after some fresh blood!
Hope you get on alright with treatment at home. Let us know what its like xxx
Hi rhea, you don't need to be a laura to be part of the club were all in this together.
Sorry your feeling it hard with the nausea but hopefully it will get easier for you and they will give you stronger drugs which will hopefully help you.
I woke up this morning a little nauseous but took my meds and started to feel much better. The 5fu home with me has been ok so far it's a pain in the ass sleeping with it tho as I always liked to sleep on my stomach but need to sleep on my back with pillows on either side to stop me from moving.
It is only for a little while and we will be here for each other every step of the way. Before we know it it will be all over :)
went in for chemo at 8.30 and then was out of radation and my day was done by 5. Radation took a lot longer then noemal as they kept having to move me to get it right and I was bursting to go to the l so all I was worried about was not holding it and going on the radation table! Back in for radio in the morning so happy that I'm started and I can talk for Ireland so the 7 hours of chemo flew as i made loads of friends.
pm me anytime we will be through it in no time :-)
I'm the same woke up this morning feeling a bit of nausaues just about to take anti nauasea meds and head in for radation then hopefully I'll be able to head off and do abit of work. So happy though that treatment is statrted and I like to see the symptoms as the cancer been killed off.
Hi Laura, u still working during all this? Go you! I really want to go back to work I have a sick line in from my hysterectomy still got a few weeks left would love to go back after will need to see how I feel.
I'm really emotional today just keep crying I don't know why (well I do) but there's no thoughts in my head when I'm crying.
Just want it to be over and this wee 5fu staying attached to me is starting to bug me but at least it comes off in a couple of days.
Well I plan to work until I feel like I'm pushing myself too much. My company are very good and I'm just listening to my body every day to see if I can or not. Don't push yourself until you're ready you have to listen to your body or else you'll do more harm that's what I think anyways.
My day wasn't great either went in for radio at 9.15 machine broke while I was in there so I had to call back again at 6 after work and I was totally rushing!im driving a curtosey car at the moment as my car is being fixed in the garage and someone ran into while I in work left no no note or anytging. The only thing that got me through was thinking today me be bad but tomorrow's a new day!
we don't need A reason to cry so don't feel like you need one ever even people who don't have cancer cry(I think I actualy cried more when I didn't haha) there just emotions that need to be realeased and it's way better letting them out then keeping them in!
the count down on so you'll have it off in a few days thats something to look forward to!
hope your day went better and don't forget tomorrow's a new one if it didn't!
Glad to read that you feel ok after chemo. I've done 2 weeks, my third week is starting tomorrow and I feel horrible... :(
I'm having chemo on Tuesdays and Wednesday is the worst day of the week. I use Zofran against womiting, but still I feel sick and extremely weak.
I had to cancel all my work as I hardly can walk. Maybe this is because I have anemia and I'm low of iron.
This week it started to bleed a little bit. Does it happened for you?
And on the top of that Diarrhea started to kill me. So it is like closed circle, I must eat good food to recover my blood, but can't because of diarrhea. So after very painful yesterday I'm eating only what is allowed when you have diarrhea, like oats, rice, bananas A bit chicken.
Do you have any tips what to do to get my strenghts back?? Maybe I'm missing something.
By the way, I felt some painful and annoying pushing all the time before diagnosis and now I feel that less and less. Probably he is going out of me!!! :)
Youre a week ahead of me treatment wise so I've yet to have the sickness/diarrhoea. But the tiredness has already hit me like a ton of bricks, the only thing I'm finding is helping with that is getting out and getting some fresh air. I too have had to cut down my work load as I was nearly falling asleep while driving!
ive radation at one today and the thought alone of it is making me feel sick! If you find out anything else to get you strength back please let me know as I feel so weak too!
atleast were all in this together and in a few months time itll just be another chapter in our long book
Hey girls well I have had an eventful few days. Ended up in hospital (still here) with a swollen face and mouth could barely talk and couldn't eat or drink. Consultant thinks it's the 5fu as that is one of the side effects and I've taken it really bad so no more 5fu for me ill be on the same as the rest of you's starring next week.
Im getting on great I'm 8 radio and 2 chemo down which is 25%done apart from brachy!couldn't keep any food down mon/tue had my chemo wed and my last two days have been great I've been working away like normal I'm in such great form too! i got my anti sick meds changed on tuesday which made such a difference! The diarahoe going by most people on here doesn't start till week2/3 but I spoke to the nurses and they said they should be able to get me on the right drugs so it shouldn't effect me too much so fingers crossed! I'm drinking 3 litres of water a day which I think is really flushing everything out and I'm still eating normally just can't stand coffee even the smell makes me sick and I used to have 3 a day!6th of feb not long it's great to get a start date I found waiting to get a start day was the worse how are you feeling?
Rhea/tough cookie - hope that both of your treatment went well this week and ye feel good!
So glad you seem to be coping with things really well and still working. You little Superwoman you.
I take great comfort from these posts and they give me an idea of what I have in store.
Can't wait to get started really Laura and get rid of this little pest. I still have my low days when everything seems to be getting on top of me but hopefully I will feel better when the treatment starts. It's weird really as I have no pains and physically don't feel any different.
Good luck with the rest of your treatment and I'll hop on board soon.xx
Hello I need some advice please, I am waiting for results they are due tomorrow, I have just phoned the specialist nurse to ask about my appointment as I am terrified and she basically said( as best as she was allowed) that it would probably be chemo first, I was expecting radiation and chemo combined, can you tell me why I’m having a course of chemo first please I’m so worried xx
