Taken 2 months but finally got my urology appointment tomorrow to see what to do about my 1 remaining nephostomy after a failed nephostomy removal its really. Playing on my mind what if he says i got to keep it its getting me so down i carnt live life lik a normal 28 yr old carnt work with it feel lik peopke r always lookin at me carnt have a bath and we don't have a shower sorry I'm down n needed a rant xxx
Massive, massive hug, I'm really feeling for you especially because you're far too young to be going through all this...you rant away as much as you want! Regarding the shower can you get a grant from macmillan to put one in or anything? At least your appointment is so close now, just hang in there, you'll soon have answers...I'll be thinking of you tomorrow and keeping everything crossed that they can solve all the problems you're having xxxx
Thanks im gonna ask my housing association advice on who to ask if im stuck with it longer i feel bad cuz i just seem to rant when i put something up on here x
Better to get it all out of system and everyone here will totally understand so rant as much as you want. I'm sure the housing association will have to do something as i believe we're classed as disabled by law as soon as we get a cancer diagnosis xxx
When i first had it in i contacted them n they said no but i become to ill to fight it i dint no we r classed as dissbled i will do some research on it if they say i got to keep it xxx
Look under definition of the Disability Act 2010, it says 'you automatically meet the disability definition under the Act from the day you are diagnosed with HIV, cancer or MS'. Get your local councillor and/or MP involved if you don't get any joy. Send me a pm if you want me to do any fighting for you, I'm still ok until I start treatment on the 12th June! Xxx
Thanks for your help the start of your treatment will soon b here
I wanna give you a hug. Everything is gonna be all right.