Hi! This is my second post, the first one was about disappointment in my consultants.. Well it has been 6 weeks since my diagnosis and I still have no answers about treatment. I had a smear which showed CIN2 in April, colposcopy with biopsies in May which showed CIN 2 and LLetz in June where they found 1b1 cc with unclear margins on one side, though endocervical margin was clear and it seems the lesion is very shallow-only 2.7mm.. I was told the diagnosis on the 16th of July by a different consultant because mine was on holiday at that time. Since then I have had an MRI and an internal MRI and now appointments have been arranged for me to get the results, I have only managed to get my GP to tell me that the first MRI seemed clear. My next appointment is on the 27th at the Royal Marsden and it will be nearly 6 weeks after the diagnosis. I haven't been able to get in touch with my CNS all this time either as she is on holiday too.. I am so worried that it's taking too long time, noone is telling me anything about my results and I spend so much time worrying that it's worse than I hope for..
I have also been put off calling my consultant as when I called him after the first MRI he was very rude and wouldn't give me any information regarding the result.. I have also developed a stitch like pain in my right side and panic about it being related.. It seems that the time the whole thing is taking is out of NHS guidelines and I just hope that if it would be urgent, I would have been contacted and asked to come in earlier, though I'm not sure..
Has anyone else been in the same situation? I feel very anxious and my imagination is not doing me any favours. I also keep thinking that perhaps I should spend this time collecting some eggs for embryos, but my initial referral to Royal Marsden was for the fertility sparing surgery so I'm hoping for trachelectomy as I don't have any children.. Now I'm worried that after all this waiting I will be told that I don't qualify and don't have time to go through egg collection..
Just feel completely in the dark, and it doesn't feel right that I have to wait for answers for this long..