I'm looking for advice on what to expect and how to understand what's going on, because it's a bit confusing for me (well, a lot confusing) and I've been driving myself nuts on Google.
Here's my story:
In June I had a routine pap smear which came back with abnormal endocervical cells. When my doctor called me about it, he told me he wasn't really worried and that false positives are common. He also reminded me that my cervix looked healthy. He referred me for a colposcopy.
July 2nd, I went for the colposcopy, and the gyno told me that she'd call me in 4 weeks for the results, but said it was probably HPV and recommended the vaccine.
August 10th I went back for my results and they told me I had precancerous cells and that they would be able to remove them with a LEEP and that I'd have to come back every 6 months for another colposcopy for the next 2 years. Once the procedure was done, she told me she'd see me in 6 months and had me make my appointment for it.
4 weeks later, I get a call back saying I needed to come in for my LEEP results and was given a next day appointment; I immediately felt something was wrong. I went in and the doctor told me "you have a bit of cancer and I need to refer you to an oncologist". I asked her how they usually procede, and she told me that usually the treatment is hysterectomy once the family is completed. When I asked about having kids, she told me "if you were my daughter, I'd tell you to have kids right away".
She gave me a referral paper that says "LEEP - Microinvasion 0.9mm by 0.05mm. Margins not involved" with no other details.
I immediately freaked out, not understanding how they could do a hysterectomy for such a tiny spot of cancer, especially if that piece of cancer was on tissue they removed, so I went to my GP and had him actually pull my medical file with all tests results to see if he had more details than the paper the other gyno gave me. He was able to find the more detailed results from the lab, which said "High-grade squamous intraepithelial lesion, glands affected, deep not affected" and then the same "0.9mm by 0.05mm with margins not involved" as the other papers. He says that he doesn't understand why one paper says HSIL and the other paper says microinvasion, coming from the same lab source on the same date, since HSIL is precancer, not cancer. He suggested I just wait until I see the oncologist on October 6th but I'm super impatient.
I don't know what to think anymore, when the secretary from the oncologist called me, she was going on about how I'm gonna have a team of 3 doctors and that they'll take care of me, and this actually freaked me out even more because it felt really hardcore, as if they were going to break some really had news. The oncologists office is at the same location as the lab where my LEEP had been sent to, so Im sure they saw both papers and checked to confirm.
Let's say the margins were clear, does that generally mean they got rid of it and just need to do another colposcopy to check for residue? Im only 26 and don't have kids yet, so I'm really upset that they're mentioning hysterectomy, especially for a tumour that's apparently smaller than the piece of tissue they removed.
Please help me understand! TIA!