I have been silently following the forums onhere and also on mumsnet for the last 6months of my journey. Unfortunately it cumulated to being diagnosed with 1b1 yesterday. I am a bit shell shocked to say the least, as I had an Mri scan first which came back clear, as at the same time a biopsy sample which also came back with "only"cin3 and Cgin. I thought I had got away with it. I felt so lucky. Within a week I had the lletz procedure carried out, and was told I would have another smear in 6months. I knew the removed areas would be sent into the lab, but didn't give it much thought, as I thought the worst that would happen would be they wouldn't have the clear margins, and there might be a micro tumour, And they would just suggest another lletz. Instead they called me in yesterday and sat me down and told me they found cancer. After a few seconds if stunned silence I asked them what this meant, and asked about the margins, but they kept shaking their head, and I didn't understand. They said if I already had children, they would just do a hysterectomy, but because I don't have any children yet, and would like a family they suggested I may be able to have a trachelechtomy, where they remove the cervix only. I would still need to have lymph nodes removed also.
Every time I had one result and thought it was fine I would have another worse diagnosis than I thought, and I'm so scared that there is more than they know, and I'll end up needing more invasive treatment. I'm not sure why they havent just offered a cone biopsy first. The cancer they found was just 7mm wide, but was an adenocarcinnoma, which is the cells on the innerlining of the cervix. So this might be the reason? The trachelechtomy is just an option at the moment, and as I said I'mpreparing for the worst, as it might have spread to my womb already, although just on a mircscopic level, as the MRI was clear.
Out of interest has anyone Had a coil fitted in the past, as I am wondering if this pushed the hpv higher up into my cervix? The dr said it wouldn't have. Also I have an ectopy, which is where the inner cells protrude from the cervix thereby making them More prone to being attacked by hpv?
On a positive note my ex has agreed to donate his sperm to freeze some embryos for me later, and another friend out of the blue offered to be a surrogate for me. I am so happy I have the support form my family and friends but at the same time I hope it doesn't come to this! It is hard to stay positive for my friends. I could hear the shock in my exes voice. Also all my family live abroad, and So do many of my friends. So I am quite lonely in my flat although I have one or two close friends where I stay. Finding a support group would be really helpfull. Does anyone know of any in Scotland?
Thank you all for listening, and I hope to find some support on here
Smear test 2nd jan 15 - hpv16 positive, smear normal
Smear test 5th feb - minor changes
Went to gum clinic to ask for colposcopy 12th feb due to vaginal bleeding after sex.
Colposcopy 18th march - results took six weeks, unsatisfactory sample
Colposcopy 11th may - cgnic and cin3, possibly cancer cells too, but they weren't sure
Colposcopy 26th may - cgnic and cin 3 only
Blood samples for kidney and liver 27th may -normal
Mri scan 12th June- all clear
Letz treatment - 19th June. Two 1cm bits removed.
Results 8th July - cgnic, cin3, and cancer 1b1 <7mm
Waiting to see gynae-oncologist