Wasn’t really sure where to post this so plumped with here.
I really need some debate. I know no one will be able to give me the right answer but intelligent questioning from strangers is what I need right now!!
Just back from my Pre op. Knew it would be awful because, quite frankly I’ve been in denial about my upcoming surgery and knew that today would be the ‘wake up call’
Saw my Lovely, lovely consultant. Wish I could bottle him for you all!
They want to do a partial vaginectomy. I’ve already had a radical hysterectomy for 2a CC. And a wide local excision a year ago for VAIn 3. This was to ‘cure’ the vain 3 but obviously didnt work. But it was a minor op and really not too bad at all.
My Vain 3 is back, and has quickly progressed from VAIn 2 in the summer. Therefore MDT has decided that to remove upper vagina (Upper of what I have left) is the way forward. The reasoning for this is to reduce the risk of it turning into vaginal cancer. As vaginal cancer is rare, and Vain even rarer, No one knows the percentage risk for this. But he believes my risk to be between 1 and 10 percent. IF it became cancerous it would require radiotherapy which for the vagina is very grim. And of course the risk of invasion and metastasis.
The risks associated with the surgery are a 1% chance of ending up with a fistula between rectum and vagina or vagina and bladder resulting in colostomy/stoma bags. This I absolutely do not want.
There is also a considerable risk of losing my ability to have pleasurable penetrative sex.
I wouldn’t sign the consent form and lots of tears were shed, and surgery is due Friday. I have told him I will ring tomorrow if I decide not to go through with it. My head feels like it is absolutely about to explode…
Thoughts? Hit me with them. Because that’s what I truly need right now.