I was diagnosed with adenosquamous stage 1b1 at the end of May - I am scheduled for a radical hysterectomy at the beginning of August.
Firstly - do most people get a letter with their smear test results through the post? I never got any result through the mail, just a call from one of the local GPs saying I'd been called up for a colposcopy. So I've no idea what the result of the smear actually came back as - should I have been given this information? Also I've noticed that people have mentioned the grading of their cancer as well as the stage - I've not been told this either. Is this information you are usually provided with, or do they only give out the details if you specifically ask?
Secondly, from what I've read, cervical cancer is usually slow to develop, which is why most people have it picked up at the CIN level, before it progresses. If this is the case, is it only because I have a more unusual type of cancer that it won;t have shown up any earlier? - this concerns me, especially as back in 2009 I had an operation for perineal repair and removal of granulated scar tissue following the birth of my first baby. They told me at the time the scar tissue would go for testing to make sure 'nothing untoward' was going on. I was never sent any results, so presumed this had come back all clear. They told me at the time they had had to remove more scar tissue than they were expecting, so surely something should have shown up? Sorry to be TMI - but the tear I suffered was quite high up (induced, ventouse delivery with no pain killers - so I completely felt the tear and where they were stitching up!), so I think will have involved some cervical tissue. Is it correct that they review your old smears when you are diagnosed - if so do you think it is worth me asking about the tissue they removed during my op?
thanks and best wishes, xx