Confused about outcome of surgery

Cervical cancer treatment
1

Hi everyone,

I've just spoken to my specialist nurse about my cone biopsy results and I'm a bit confused with what she said and what I should tell my family and friends.

I rang up to check if my results where back and when my appointment with the consultant would be, the nurse told me that I would have to have a colposcopy in 3 months time , then 3 months after that and so on... But my consultant dident want to see me again until then, but I assumed he would want to see me as a follow up to the op to discuss the results, is this normal???

The consultant did tell me straight after my op that he was sure he got all the cancer out and a took a margin around it for testing, but I had to wait for the histology results to be certain. When I asked the nurse if the margins were clear she said that all my notes said was that my condition was now classed as CIN.

So does this mean I am cancer free? And does it mean that I now just have pre-cancerous cells? Or am I still classed as having CC? And can I tell people I have the all clear or not?

I just expected to have an appointment with the consultant and for him to tell me in person that the results show I am now cancer free and for him to explain to me why I need the colposcopies this regular

I'm just a bit confused with it all, I want to be happy I don't need further surgery or chemo, but I cant help thinking its not as good news as I first thought! :(

 

Abnormal Smear 15/04/2013, Colposcopy & Lletz Procedure 30/04/2013, Diagnosed CC 15/05/2013, Cone Biopsy 03/06/2013, Results CIN present 3 monthly colposcopies needed

2

Hi Lisa…
As you know I can’t comment on that part of everything yet, but i didn’t want to just read your message and not reply.
I think that if you weren’t “all clear” then they wouldn’t be leaving you for 3 months. So I think you probably are… But I can understand you needing to hear those magic words!!

Maybe give the nurse a call back and ask if the consultant could actually call you? you need to know for your own piece of mind!

all the best :slight_smile: xx

3

Thanks Em,

I've made a list of questions I have thought of since talking to the nurse, so I will give them a call in the morning again.

I've since been thinking maybe they havn't told me I've got the all clear until they've double checked in 3 months that the CIN hasen't progressed to cancer, then maybe then if they will class me as cancer free.

Thanks for your reply

Lisa x

Abnormal Smear 15/04/2013, Colposcopy & Lletz Procedure 30/04/2013, Diagnosed CC 15/05/2013, Cone Biopsy 03/06/2013, Results CIN present 3 monthly colposcopies needed