Hello to all of you beautiful, brave and inspiring ladies.
I have been reading these forums for a few weeks alongside my investigations for my abnormal smears and, before I launch into my story, can I just say how wonderful this forum is and how comforting it is to see the support provided on this website to ladies at all stages of their cervical journeys.
My story started back with my first smear at age 25 (I'm now 29) which showed mild dyskariosis. I went for colposcopy then and the consultant reassured me that he couldn't see anything worrying and didn't even take a biopsy. Fast forward a few years and my last smear came back the same - mild dykariosis. So off I went again to colposcopy at the end of July 2013. This time it was at a different hospital in Cheshire and the lovely nurse colposcopist thought she saw an area with higher grade changes than suggested by the smear so she took a biopsy. This came back with mild to moderate dysplasia, up to CIN 2. The worrying thing was that it also reported some cells which were "suggestive of but not diagnostic of high grade CGIN" also. Was quite shocked as I know this is a rarer finding and not as easily dealt with so I was upset at this result. To complicate things further, the week after i got the results I was getting married and emigrating to New Zealand! So obviously, it was not the right time to undergo treatment for this and they advised me to get it sorted as soon as I got to NZ.
So I took a copy of the histology report to a good gynaecologist here in Auckland and he told me that, on the basis of the UK histology report, I would need a cone biopsy under GA. I could have cried. However, he decided to take a look himself first and to take more biopsies and a repeat smear for completeness. This time, he also took an endocervical brush to see if he could confirm the high grade CGIN that the UK biopsy suggested.
SO, I waited on tenderhooks for a week for his phonecall and when it finally came I was a bag of nerves. However, the biopsies, smear and endocervical brush that they did here show CIN 1 only and no evidence of the high grade CGIN! Currently, the gynaecologist here is getting in touch with my hospital in Cheshire to request their slides so that he can take a look at what they saw.
Sorry for the really long post but I had to get it off my chest. I am far away from home and don't have any close girl friends here yet that I can talk to about it all. As you can imagine I am now very confused about where to go from here. Do I need a cone biopsy or just a LLETZ? Why could they not find the CGIN here - surely if it was there it would have shown up on the endocervical brush? I really don't want to have a cone biopsy if I don't need one as I am newly married and will be looking to start a family in the near(ish) future and would be so worried about losing alot of my cervix. Obviously though, if the CGIN is there then I need to just get it done. AAArgh I am so so confused :( :(
Just have to wait I guess until they get the results from the UK but then which biopsies are they going to base my treatment on? I hope there isn't CGIN there as this is all taking a long time to sort out so I have anxiety about that too :(
Has anyone else had conflicting information like this?
Apologies again for the length of this post and thank you to anyone who has continued reading to this point!
Also, thanks again to you all for being so wonderful, I love this website, it has kept me sane over the last few weeks.