CIN3 Dr was not nice at all (pregnancy mentioned)

Little bit of back ground.. In 2011 after having the implanon implant removed I was having issues with cycles, I went to my old GP several times

and told nothing was wrong, I was having light scanty bleeding randomly. Eventually she done a pap test and said my cervix looked "raw" and sent me for further testing

before the pap results were back because she was worried. The colopscopy wasn't that bad, The Dr doing it said he could see an abnormal blood vessel so he took a biopsy.

The pap and biopsy were both normal so I was told to have another pap in 6 months and again 6 months after that, All came back normal and negative for HPV.

I eventually got diagnosed with PCOS and needed fertility meds to get pregnant with our son. 6 months after he was born I had another PaP which was also normal.

I then had another baby concieved naturally. I had bleeding early on in both pregnancies but that was due to a SCH. I'm now 8 months PP and had been having regular cycles until last month when I had some spotting mid cycle, I didn't think much of it at first until this cycle when I again started bleeding 5 days after my period ended and it lasted a week. I went to my new GP right away who said I may have been pregnant but I doubted it so she had me come back to do a pap test the day after my bleeding stopped. Less than a week later the results were CIN 111. I asked the Dr about it and she said it's cancer and I need treatment ASAP and pushed me out the door without further information. I immediatley freaked and started googling ( bad I know ). Everything I read said CIN111 was pre-cancer so I went back the next day taking my partner with me this time. She again said I had CIN11/111 and needed treatment asap I again asked if it was pre-cancer or cancer she again said cancer and told me not to ask more questions I will just confuse myself. I was like ummm everything I have read CIN 111 is pre-cancer and she there is no such thing! I then asked if it was invasive and she said no it needs treatment before it is without even realising it she just described pre-cancer.

Am I doubting the results? No because I really didn't like my old GP so I doubt she took decent samples in the past because how can I go from normal and HPV negative to CIN111 in less than 2 years ( I am in Australia and paps are only done every 2 years ) and I have never missed one.

So my questions are: IF I have I have been having my tests every 2 years and some where 6 months apart including a biopsy, what are the chances this is more than CIN111?

I had bleeding in 2 out of 3 pregnancies which had an explanation but  now I'm not so sure that was the case at all. I aslo had preeclampsia in those 2 pregnancies probably not related but I don't know. I have an appointment in 2 weeks for the colscopy which is a long time when your unsure if you have cancer or not LoL.

I already suffer from anxiety so you can only imagine now I have convinced myself that I have cancer and my children are going to be left without a mum. My partner is now re-appreating what he has but still doesn't think we should worry until we have a proper diagnosis and I know he's right but I can't help it.

He thinks thi is his fault because when he was younger he had a lot of relationships where as I have only been with 3 people in all my 35 years  and I had not been in a relationship for a year before him, we have been together for 8 years.

Oh and another question I have is.. If they clear it all and we continue to have unprotected sex will I be re-infected or will I have a immunity to it? SOrry I have said alot but my GP was not helpful at all and believe me I am in the market for a new DR

 

Hi there,

I was diagnosed with CIN 3. I cannot answer the questions about pregnancy, having not been through it. But how they explained it to me is that is CIN 3 is precancerous cells. Not cancer. The treatment I had was a LLETZ procedure to remove all of the abnormal cells. I too suffer badly with anxiety and the whole thing messed me up badly too. As for being infected, I  had high risk HPV, which in my case was the cause of my problems. I'm no longer in a relationship but was told to continue having protected sex in the future. I have just had the results of my six month check up and my cells are normal but for me I still have HPV which I'm upset about as my body hasn't cleared it. For me now I have to return to hospital. But I hope this answers some of your questions. Try and maybe get to see another doctor or even your hospital ,  if you are under their care .Try not to worry, but it's easier said than done. Hope you get sorted soon x

Thank you for replying

going to make a list of questions to ask the specialist. I'm still with the same partner so I'm going to ask if I can get it back again because I figure if I'm still infected seems I have cin 111  if we will just be passing it back and forth for the rest of our relationship. We've been using condoms since the birth of our son 8 months ago so I don't know if his body could have cleared it by now. It sucks theres no test for men.

 

Any suggestions on questions I should ask? Thanks 

Thank you for replying. Hopefully your body will heal it with or without further treatment, hopefully before.

going to make a list of questions to ask the specialist. I'm still with the same partner so I'm going to ask if I can get it back again because I figure if I'm still infected seems I have cin 111  if we will just be passing it back and forth for the rest of our relationship. We've been using condoms since the birth of our son 8 months ago so I don't know if his body could have cleared it by now. It sucks theres no test for men.

 

Any suggestions on questions I should ask? Thanks 

Hi, I wanted to write as I can tell you are 'in the dark' and dont want you to worry too much. 

firstly, don't worry about 're-infecting' each other, hpv is a virus, you will have it for the rest of your life yet it will lay dormant and if your immune system is down the it may appear again, then go again then come back again. I think trying to help your body's immune system is the best way to kick it, rather than not having sex, he can't give you something you already have. secondly, men carry hpv, the hpv won't harm your partner (very very very rare) so he will be fine. as for your old smears being normal it could have been the fact your immune system was good, if you were ttc' then I'm guessing you would have been healthy. Then when you became a mother did you find you tended not to look after yourself as much as you would, diet wise etc I'm just thinking of a reasons why 'now' but I know I'v read pregnancy does make cells progress quicker because of the hormonea. lastly your gp is a total idiot and I think you need to report her/him. Ring the surgery on Monday and ask for a print out of your results, aslong as it says CIN 2 / 3 then it's not cancer, like you said its pre-cancerous. Make sure you report her, imagine if you had of been unstable and she'd told you you had cancer and you went and did Somthing silly. She's causing harm by not knowing what she's talking about. I hope you are ok. I had CIN 2&3 and high risk hpv, and I had a lletz in March 2014. Clear smear and negative hpv since :) so fingers crossed you will be fine. One last thing, tell your partner it could have even been the 1st person you slept with that had the hpv, there's no blame anywhere. it's just unlucky. I'v been with 4 people in my 28 years, only takes one night. So hopefully he won't feel guilty. My ex of 11 years felt the same, guilt. But like I said it could have been the person I first ever slept with and even then it's not his fault. It's life. 

wishing you the best of luck xxx

Thank you for your reply Gem gem. I had heard the same about pregnancy and the cells changing quicker.  As I was pregnant again 11 months after giving birth ot makes sense that my immune system and body were not coping well with anything.  Not just my cervix. I had emergency surgery a few weeks ago to remove my severly imflammed gallbladder which was fine before pregnancy.  

no problem :) well it sounds to me like it will be a mix of the two reasons why the hpv has only just decided to show, one being your pregnancies, and two your immune system may have been low. But on the bright side I'v got a good feeling now that you are on top of it and being treated I think you will kick the hpv right back out your system. Good luck xxx

Thank you again for the reply. I'm assuming my immune system was shot to pieces for awhile because I was on antibiotics for a while due to gallbladder inflammation. I had it removed a few weeks ago and was starting to feel great again. October 1st seems so long a way lol. I'm trying to distract myself which is easy in the day with 3 children.