I have just come back from my 2nd Colp since everything started and my Colp Nurse suggested I come here for support.
I am 25 and I have a wonderful husband who I have been with for 6 years. I don't have any children and I currently studying at Uni.
Since my early teens, I have always had concerns about my periods and I have been banging on my GP's door now fow 8 years plus. I have been on the oral pill for 2 years from 15-17 and then the Depo contraceptive injection from 17-20. I was taken off the injection by my GP at 20 due to bone density concerns and I have used condoms ever since.
In 2009 I went to my GP (who thankfully I don't see now) and explained that I was getting bleeding after sex and stomach pains and that my periods are getting me down as they did in my teens and I think that there is something more going on. He laughed and told me 'you're a woman and lots of women go through what you are going through, it's perfectly normal'. I left the Doctors crying and haven't returned until my first smear call. I accepted that perhaps he was right and got on with it!
I got my letter for my 1st smear about a month before my 25th Birthday. I booked in with the Nurse at my Doctors straight away as I know my own body as a woman and I knew this was opportunity to prove my point. However I did not expect things to turn out as they are.
My result came back as Severe Dyskaryosis (CIN3) and I was referred for Colp in July 2012. The CIN covered all 4 quadrants of my cervix so they removed about 2-3 CM of my ectocervix (the outer bit I think) with a Loop Diathermy. So after this I went away thinking that was it and the nesty cells were gone.
They took away 3 samples at the time and two of the edges of the samples had involvement. They chose to monitor this in 6 months and thought perhaps that the Cauterisation after the Loop would have taken care of any cells that wanted to have a go after the main ones were removed!
Interestingly, none of my biopsys showed any evidence of HPV. HPV was therefore absent in the samples which I always thought from what I have read is the main cause of CIN3
So I returned back for my repeat smear/follow up smear in December 2012, I had my results last week which showed CIN3 still post treatment,
So I went for a Colp again today and I saw on the screen this time, I have a lesion on one side of my cervix and then CIN3 cells on the other which have a mosaic vascular pattern. The Nurse took a biopsy of this and the other lesion and she has sent them off to be looked at.
She tells me that she is going to refer my case to be discussed at an Audit/MDT and then they will write to me with a plan of action.
She said that this does not mean Cancer and that the MDT will help them to decide how I am managed, as they don't want to treat me with Loop Diathermy again due to the risks involved so soon after the last.
I just wish this was all over, I just wanna have one babe when I have finished my degree then they can have my womb if they want it, I don't care as long as I am free of this worry. I also spoke to a new GP about my full concerns and he has referred me for an Ultrasound of my Womb to check on my historical concerms around pevic pain, bleeding etc. My younger sister has Polycystic Ovaries but is 7 months pregnant at the moment so this is nice news. Hopefully my scan will be clear!!
I understand that there are people who are all just as scared as me here and also people who have a diagnosis of Cancer and probably wish that they were at the pre-cencerous stage like me and I feel a bit guilty for offloading in view of this. I just wanted to share my story as I when I have been reading, I have not seen many people my age with this level of cell at a first smear and I guess I thought this may help me and others who may be in the same boat!
Thanks for reading. Sorry it's so long!