I was initially diagnosed as having 1a1 adenocarcinoma in July 2010 but due to the clear margins was told that 'it was gone, and not coming back' and that I should get on with the rest of my life. I asked the consultant was there a possibility of skip lesions and was told no. Everything was ok until January this year when I was called back following my smear, I have been told repeatedly about skip lesions since and that I required further treatment.
I am now almost 6 weeks post radical hysterectomy for what was initially 1b1 adenocarcinoma, unfortunately post surgery this was re staged as 2b due to 2 lymph nodes being affected and slight spread outside of cervix. My oncologist wants me to do 4 cycles of Cysplatin and 5FU, with 28 radiation in the middle. I have told her that I am not doing the 2 brachytherapy.
I am wondering if anyone can advise me what to expect, I am finding myself focusing on all the side effects both l/t and s/t possible. I have already had complications following the hysterectomy with my bladder not working and having to self catheterise, I also had ureter damage and required more surgery to fix it. I am also struggling to believe what the doctors are telling me as my confidence and trust has been shattered. I can appreciate why my consultant initially told me what he did, but it doesn't change how I feel.
Anyway I would appreciate if anyone could tell me honestly what I can expect with my upcoming treatment both l/t and s/t.