Hi, I have searched and searched but I can’t find any stories that start the way mine seems to be starting, so I just wanted to ask a few questions.
I had a smear in Dec 2020 which I never saw the results of because I moved house and the letter went to the old address, so I phoned the doctors and was told it was negative and I was being recalled in 12 months. Cue the confusion, but I couldn’t get any other answer out of the person on the phone. I even downloaded the GP app and there is no information at all there about any of my previous smears, just the dates I had them.
Anyway, somehow it got to 2023 and I still hadn’t booked a smear, so I rang my new GP and got seen in March, then 2 weeks ago, I got an email with an appointment for a colposcopy, then got the letter with the results of HPV positive and high grade severe dyskaryosis and the info about what would happen at the colposcopy. And the googling began - which I know isn’t recommended but I am glad I did because I am not daft and read the right things on google and it meant I knew what everything meant when the colposcopist was talking to me.
I quite calmy agreed to the LLETZ if it was needed, and hopped into the chair. She explained everything to me, and I watched it on the screen because how often do you get to watch stuff like that?! Anyway, she used the acid wipe and the vast majority of my outer cervix went white, I have an ectropian cervix so that bit stayed pink, but there was a weird lump right on the edge of the opening, I can only describe it like a popped bubble wrap bubble. Then she painted it all with the iodine and it all went yellow, with brown around some of the very edges. She explained to me that the area that she would need to remove was large, and that she wouldn’t be able to do it because she would need to go right above the visible cervix to get to it. She said she would recommend me for LLETZ under general anaesthetic instead, but she would send off 3 biopsies first and that she would need to wait for the results before she could refer me.
And then I came home and googled again, discovering that the white section was likely abnormal cells, especially as it then didn’t turn brown with the iodine. There were lots of little lumps that did turn brown, at the time I thought it looked like the solution was grainy, and now I feel like I might not be remembering it correctly and making it worse in my head, but I can’t shake the feeling that something was wrong and she didn’t want to worry me by telling me what she suspected.
So I suppose one of my questions is, did she have to send off the biopsies before I could be referred for LLETZ under general, or could she have just booked me in for it?
We were talking about holidays before the colposcopy and she said she wasn’t sure she should do it because really we shouldn’t go away within 4 weeks of the procedure, and she could just have a look then, and book me in to do it when we got back if it was necessary, so I feel like there would be no need for waiting for biopsies if it was just a case of not being able to get to it fully?
Basically, after what I saw on the screen and then waiting for the 3 biopsies, I am driving myself mad with not being able to find anything relating to those things on the internet, either anecdotally or in NHS guidance etc.
Has anyone got any experience of not being able to have a LLETZ because it was too big to see fully, and then having to wait for biopsy results before you could have it under general?
Thank you if you got this far!