I first had an ‘odd’ bleed - big clots after passing a bowel movement. I was on holiday at the time so spent the whole time googling. (Aug 2014)
It never happened again and I can’t remember whether I went to the Dr or not.
November 2014 I was woken in the night by the feeling of something ‘falling out of me’ I thought I’d soiled myself but it turned out to be a blood clot from my vagina the size of my hand.
The next day I went to the Dr who couldn’t do a smear because of the bleeding but advised me to come back. A week or so later I went back - the bleeding had stopped. The Dr tried to do a smear but as soon as she put the speculum in I bled heavily. She also gave me a pelvic exam which she didn’t seem concerned about. She referred me for a pelvic ultrasound which I had at the beginning of Dec 2014. Results came back quickly that I had fibroids.
I was also having horrendous period pains. I described it as having an ovary on fire while someone was stabbing it with a knife and twisting it at the same time. I was reduced to tears.
This didn’t happen very often and although my bleeding was heavy, it was manageable and because I was diagnosed with fibroids I thought it was normal. I would sometimes go 2 weeks between bleeds but sometimes 5, all this was told to the Dr on my numerous visits.
By September 2015 I’d had enough and wanted something doing about my fibroids. I went back to the Dr and ask for another scan to see if the fibroids had grown. Some of my symptoms were pressure on my bladder and bowels and I thought this was down to the size/position of the fibroids.
I hadn’t drank enough for an ultrasound so they did a transvaginal scan instead. I got a letter a couple of weeks later to make a none urgent telephone appointment with the Dr. Due to the none urgent requirement of the letter coupled with the death of my sister, I didn’t do it straight away.
Eventually I was told that the scan had shown up a thickening of the lining of the womb with some blood clots and I was referred to the gynaecologist. The Dr said it wasn’t urgent so I stupidly didn’t take the first appointment offered.
When j eventually did go the gynaecologist did a smear where I bled a lot. I got dressed but the gynaecologist wanted a second opinion who tried another smear. I bled again while they took 9 swabs and they struggled to stop the bleeding with silver nitrate.
This was on Friday 21st nov and they asked me to come back for a hysterocopy on the Tuesday and gave me norithisterone (I think ) to stop the bleeding. It still hasn’t worked.
The consultant on the Tuesday couldn’t do the hysterocopy because of the bleeding but did a manual exam and took some swabs. I started pouring with blood as soon as whatever was put in me went in. There was a lot of mumbling between the consultant and the nurse and they took some swabs. When I’d got dressed the consultant said to me that in her experience, what she had seen meant that I have cancer of (I don’t know if she said the womb or neck of the womb). She asked when my last smear was - I couldn’t give the date but I know that even without the ones the Dr tried I was within the 3 years. I later checked and it was March 2013. I always go when I’m called.
Anyway, I was taken in a room with the oncology nurse who couldn’t tell me anything other than the consultant is very experienced and won’t be wrong. I definitely will have cancer! They arranged an mri scan (1st December ) and apparently they will be having a meeting tomorrow to look at the scans and the swabs and decide what treatment I need.
I will find out Tuesday 8th.
As you can imagine, I have been beside myself since the 1st appointment.
I don’t know if it’s cervical cancer or womb cancer.
I fear it’s advanced as the consultant was able to tell as soon as she looked into my vagina and saw the blood.
I have googled and Googled but can’t find what I am looking for.
Obviously I dont expect anyone to diagnose me here but just wondered if anyone had any similar experience.
I’m 47 married with 3 children 19, 15 and 8. My husband is 71 and I am dreading leaving them without a mum and wife.
I’m so annoyed for not pushing it more with the Dr originally but fibroids seemed to fit the bill.
I also wish I knew whether it’s cervical cancer or cancer of the womb I should be researching x
Sorry for the long post. Any information you have would be very interesting to me X