I'm Katie and I'm 23. I have recently been diagnosed with Cervical Cancer.
I am due to have a cone biopsy on Wednesday and the consultant has told me this will allow them to stage the cancer.
I feel slightly hard done by as it has been allowed to get this far due to the fact I am not entitled to a smear test.
I also feel very up and down since receiving my diagnosis and I'm unsure if this is normal or if I am in shock?
there are many unanswered questions like will I need more treatment and will my fertility be affected.
I feel very isolated and therefore have turned to this forum.
i don't want to discuss my diagnosis in depth with my parents as I know they are worried and emotional. My boyfriend won't tell me how he feels and I feel as though he is avoiding me i case I ask.
I just wondered if it ever really sinks in or has it and I'm just coping with it all.
I’m so sorry to hear you’ve been diagnosed with CC. It really is the most shocking thing to hear and my heart goes out to you. It’s definitely a roller-coaster and feeling up and down and everything in between is completely normal. Once you have some more details and a treatment plan you’ll be able to focus but at the moment it’s a really difficult time, so sending you lots of hugs.
It’s good to talk about how you’re feeling, but if you can’t to those close to you then please tell us so we can help from afar. I found writing really helped me deal with things in the first weeks too so I started a blog which I still keep up.
I think most will agree that the waiting and the fear of the unknown are the worst parts of being diagnosed. You want to know what’s next and what will happen.
Will you have your cone under GA? It will give your team lots more information then they can work out how to get you better.
Feel free to ask anything, we might not have specific answers for your case but there are lots of lovely ladies who know exactly how you feel right now.
Washing you good luck for Wednesday xx
I hope you’re are ok… Well as ok as you can be at the moment!
I was diagnosed with CC last month … And at 25 I feel like you that with earlier smears it could of been caught before it had progressed to this!
This forum is incredible for abit of support … Like you I don’t want to open up too much to my parents and completely freak them out, I feel like I’m being strong for them??
I’ve not been staged yet either, I have an appointment with my consultant tomorrow to discuss further treatment … And I shall ask him fertility related things and everything else I can remember then!!
Being up and down is normal … Well I would guess so! I have been! One minute really positive and wondering what all the fuss is about then crying in the toilet at work! I’m like a basket case! But all the ladies on here have reassured me that’s quite normal!
I hope you get on ok on Wednesday. I’m sorry I can’t offer abit more support but I just wanted you to know you’re not alone!!
message me if you’d just like a chat!
All the best
Hi katie just wanted to say good luck for Wednesday. The cone biopsy isn't as bad as it seems, I had mine under ga and done cold knife. Things will move quickly once you are staged.
The hard thing is coming to terms with the diagnosis. In my case I felt healthy and had no symptoms when diagnosised, and after having my last surgery radical hysterectomy almost feel things are still unreal. My mind hasn't caught up with what procedures I had. I don't thing it's an easy diagnosis to get your headvaround, I feel like I am still in denial. I don't think it's an easy illness. What I found help was talking to people who were complete strangers and maggies centre had good resources.
Take your time adjusting as much as you can. There are no right or wrong ways to feel as your emotions which change every hour, there are times you will worry about the future, about the procedures but at thevend of the day this illness is curable in the early stages. I hope and pray this is the case for you.
Good luck and my thoughts are with you
Thank for all your replies and best wishes.
Jo - Yes, my cone will be performed under Ga which I think is best.
Em - Thank you :)
I will let you all know how I get on.
Really sorry about your CC diagnosis, I was diagnosed last month and felt exactly like you are, it's normal to feel up and down at a time like this and this site is a really good place for advice, support or even just to vent your frustrations.
Do you have a contact number for your specialist nurse or the consultants secretary? I rang the nurse three times in the first three days after getting diagnosed because I kept thinking of things I forgot to ask! They were really nice to me and didn't mind me bothering them :)
I had the cone biopsy under GA two weeks ago now and I'm still waiting for the results. I was scared before going into hospital but it was so much easier than I thought. So try not to worry, take a book or some magazines with you though because the worst part is the waiting
Good luck for tomorrow, hope everything goes well for you
Sending you lots of hugs
Lisa x x x
Abnormal Smear 15/04/2013, Colposcopy & Lletz Procedure 30/04/2013, Diagnosed CC 15/05/2013, Cone Biopsy 03/06/2013, still waiting for results...
All the best for today Katie… Hope everything goes ok xx
Im home now and in a little pain but resting in the hope the bleeding will slow down .
Lisa- I do have a number :) I've asked lots of questions today and fingers crossed for the results.
Thanks again xxxx
Good luck with the results Katie,
And do try to rest, I went to a Zumba class a week later and regretted it straight away! Even though I took it slow I felt terrible afterwards! :(
But I'm starting to feel normal again now :)
Get some rest, think positive and hopefully you should be fine
Lisa x x x
Abnormal Smear 15/04/2013, Colposcopy & Lletz Procedure 30/04/2013, Diagnosed CC 15/05/2013, Cone Biopsy 03/06/2013, Results CIN present 3 monthly colposcopies needed