I have found much comfort in this forum over the past few months, as I'm sure many people have.
I wonder if anyone is/has been in a similar position to me and can give me any advice. I had copolscopy, LLETZ and biopsy on Sept 10th following a Smear test showing high grade dyskaryosis. The nurse/doctor performing the LLETZ seemed fairly confident that it all looked very typical and that she had got a good margin. I waited for 5 weeks for my results and figured that the timescale meant everything had been removed with clear margins. Unfortunately I was called back to see the consultant on 21st Oct. He told me the biopsy showed CGIN with no clear margin and that they had found a small patch of 1a1 adenocarcinoma on the previously removed tissue.
I had another procedure under LA - I'm not sure quite what as he didn't use the loop until he was cauterizing at the end and it has been much more painful recovery this time round. I only realised this in hindsight so didn't think to ask at the time.
I asked what the next step might be and the consultant told me that there is such a variety of things that could happen that we will discuss that dependant on the results. The only reason I was able to be so calm at my last appointment when he told me about the cancer was because of this site. I asked for the definitions and staging and was able to see beyond the 'c' word because I was equipped with some knowledge.
I don't feel the same now. I'd really like to know - what are the potential results and the subsequent treatments? I have read everything from hysterectomy to more frequent smears.
Can anyone share an experience that might help me?