A bit confused???

Hi ladies

first of all I just wanted to say thank you, finding this forum has been invaluable.  I had my smear a month ago that showed Severe dyskarosis, I had a colposcopy that identified CGIN 2 weeks ago and yesterday had what I was told was the lletz procedure but they took a cone biopsy (if that makes sense!!!) 

At the colposcopy apt the dr was stressing that what I had was quite serious but whenever I talk to people it seems like a very common occurrence, I'm not sure how I am supposed to be feeling. After having the lletz yesterday I feel quite emotional,  but kinda feel like I shouldn't and should just be getting on with it. The dr said yesterday that the chances of it being more sinister were low and I heard her whisper into her dictaphone CIN3 and CGIN2. Does that mean its all over now??? I don't know what happens next, would anyone else who has has CGIN be so kind as to share their experience with me? I know I have to wait 4-6 weeks for results but didn't the dr kinda give them to me yesterday by saying it seems ok?? 

I have taken a couple of days off work and plan to stay in bed,  physically I feel fine but emotionally I'm quite, well, I feel a bit traumatised BUT that isn't really the word, that word is too strong for how I'm feeling but that to a lesser extent sums it up. Gosh, I really am confused, sorry guys, I'm not making much sense?

If you made it to the end of this post, thanks for sticking with it lol, I'm not really sure I've explained myself well. 

Amanda

Hi Amanda,

I didn't have the same type of abnormality but I did feel very emotional after lletz for about a week, I felt very sad and down and felt like the slightest thing would start me crying. I don't know if it was the lletz affecting hormones or everything catching up with me once the lletz was done, I do remember googling to see if it was normal to feel depressed after it. You will get the result of the lletz in a few weeks time, they will look at what they removed in the lab and check that they removed it all. The doctor was probably just saying how it looked to her while she was doing it. Hope you're feeling better soon.

Thank you sunnyday. I have to admit, it's the feeling down bit I'm struggling with, just wanna hide away for a few days which makes me feel bad as I have actually been very lucky to have been treated so quickly! x

Don't feel bad about how you feel, you've still been through a lot, everyone goes through the same fears from the minute they get that abnormal smear and it takes it's toll. Buy yourself something nice or do something that makes you feel better or just take a few days out and relax or whatever, you deserve it.

Hello,

I had my LLETZ last week for CIN2/3 and I think I am just about daring to let myself think that maybe things will be OK. I too asked the doctor if she thought that I could have cancer after the procedure - she said that the chances were negligible - I guess it would be unprofessional to give me an outright no if there is still a remote chance. I won't be happy until I have the LLETZ results in my hand with "clear margins". Having abnormal cells is more common than you think (I just felt reasurred when I went to the colposcopy clinic and there were other women in the waiting room - all ages, just normal, everyday women!! Is that just me??) but that does not take away from the fact that they can scare women witless! The thing that gets me down is realising that life will never be the same (forgive the melodrama!! I know that I am super lucky to have been found at an early, pre-cancerous stage) but I feel changed - no longer the same care-free person I was just 2 months ago :( 

Anyone had any LLETZ side effects? 1 week later, I am still bloated and have been suffering abdomen, groin and back pain. Never had this before and not sure if it is even related to the procedure but am off to the doctor's tomorrow. I am an even bigger hypochondriac than before!!

Ack Amanda, I really feel for you. I went through the same sort of emotions after my lletz. My consultant said "widespread" but wouldn't say anything else but that we'd have to wait for the biopsy results. At the end of the day they can only see so much and it's the biopsy that reveals how deep the cells are and if they're cancerous. 

Unfortunately you have to sit and wait and try to get your head around it, which isn't blooming easy. It's a very scary time and a lot of us have been through it too so it's nothing to feel bad about. It can be quite a lonely experience too, a lot of my friends and family were playing it down, telling me I'd only have to have the cells lasered off and nothing to worry about. I knew what I was facing and I was relieved to finally get my diagnosis and get it sorted out. 

You can't change the way you feel and waiting for results is very long and agonising  .I got through it by distracting myself and spending a lot of time with friends doing fun stuff. 

Just remember you are not on your own here, any questions, fears, feelings, just vent them out and hopefully that will help. 

I hope you get your results sooner than expected 

Liane X

Thank you so much for your replies, I can't  begin to describe the comfort it brings to know I'm not alone and that I'm not over reacting .  All of my friends seem to have had laser treatment of some sort and feel the need to tell me how I am making a big deal out of nothing and to stop being silly but I not think any if them have had CGIN, I know they mean well but they're just making me feel bad lol. 

Waiting for the results is gonna be tough but I have a feeling that this forum will be a great support and source of comfort

 

xxxxx

Unfortunately it's the way a lot of our families and friends cope, they don't realise that by playing down the potential seriousness of the situation it makes us feel worse. 

It's the usual situation of everyone you talk to has had an abnormal smear and they tell you ALL about it lol. It's good to know about other people's situation sometimes but we are all so different. Your personality type goes a long way towards how you deal with things but we are all only human. No-one can say they didn't worry or think about the worst case scenario.

Waiting is always the worst part of it and it's something you have to learn to deal with if you need further investigation / treatment etc. Just get through one day at a time and allow yourself to feel however you are feeling....you are justified. Don't let anyone play down what you are going through X